Real life jigsaw baby has skull smashed and pieced back together to relieve fatal pressure on her brain
Little Laurie Jones is the definition of a jigsaw baby after lifesaving skull surgery left her with an enormous JIGSAW scar across her whole head.
Two-year-old Laurie was born with craniosynostosis, meaning that parts of her skull that should be separate are fused together before birth.
This meant that bones that should move around when the toddler was born wouldn’t budge, leaving her head twisted and one side bulging.
Not only did this leaving her head deformed but it could have created fatal pressure on the youngster’s developing brain.
Fortunately, after nine-hours of major surgery and a full blood transfusion, Laurie is back home with mum Sadie Roberts, dad Steve Jones and sisters Hollie and Jess.
Proud mum Sadie, 38, said: “Laurie really is our jigsaw baby.
“The front of her skull was taken off, broken into pieces and then put back together.
“She was cut from ear to ear across the top of her head – it was really difficult to see.
“She had a full head-bandage and her eyes were swollen – she was very poorly.
“We were told at any time it could put pressure on her brain.
“One doctor was concerned there was not enough room for her brain to grow and it could have ended with us losing her.”
Craniosynostosis affects only one in 2500 babies and means bones distort as they grow.
This left Laurie’s head growing abnormally, and meant she didn’t have an eyebrow on one side.
After the live-saving surgery at Birmingham Children’s Hospital, she is just like a normal two-year-old, but she may need further surgery on her eye in later life.
Sadie, from Richards Castle, Shropshire, said: “Laurie is incredibly bright and mischievous as you’d expect a two-year-old to be, but it has been really hard.
“We always said if it was just for cosmetic reasons we wouldn’t put ourselves through that, but if her condition compromised her future we’d have to go ahead.
“It’s been really stressful on all of us, really.
“It will take two years for her head to completely enclose and be like a normal child’s, so we will have to be careful with her.”
Laurie will continue to have checks on her head for the next 10 years, but now she has recovered from her life-changing operation, the family have agreed to speak out to raise awareness of the condition.
Sadie is indebted to Cranio Ribbons, a support network of parents who have seen their children go through similar operations, who have a Facebook page.
Relieved Sadie said: “I want to show other families going through the same thing there is light at the end of the tunnel, to show what it’s like on the other side.”
“The parents on there have been an absolute Godsend. You can go on there and vent any feelings you’ve got and there are people there who know exactly how you feel.”
She said another Facebook group called Lucy’s Head Start aimed to raise money for parents whose children need craniosynostosis operations.