Mum-of-two dislocates joints 30 times per week after painful condition ravages her body
A mum-of-two who dislocates her joints an eye watering 30 times per week is slowly being ravaged by a rare condition.
Saffron Taylor, 22, from Birmingham, was diagnosed with Ehlers-Danlos Syndrome (EDS) last year – which makes her joints so weak that even making a piece of TOAST for her kids can cause her fingers to dislocate from the sockets.
The full-time mum has spent the last six months living off a liquid diet – because her condition got so bad that even CHEWING would dislocate her jaw.
Each day Saffron dislocates joints such as her fingers, toes, wrists, jaw and ankles, with simple tasks such as getting dressed or popping some bread in the toaster for her children having agonising consequences.
The condition has become so severe in the past year that Saffron has spent hours in A&E to have her joints popped back into place.
Saffron said: “I can’t do anything without dislocating one of my joints, it’s agony but I have two children to care for and that’s my main priority.
“Simple tasks such as making myself some toast, or hoovering the house can leave me in agony.
“I have dislocated my whole knee joint, parts of my spine and hip.
“A cuddle from my kids is enough to leave my shoulder dislocated, and even sitting on the loo can cause my knee joints to pop out.
“I can’t put those back myself either so I have to go to hospital at least once a week.
“It’s a devastating illness but my main focus is creating as many memories with my children as possible while I still can.
“I know it will eventually leave me paralysed and that’s why my sister-in-law, Ryah, has set up a GoFundMe page so we can save up for trips away together.”
Saffron was diagnosed with Vascular and Hyper-mobility Ethlers-Danlos Syndrome at the beginning of last year after suffering from a number of worrying symptoms.
She added: “My condition started to get really bad about a year and a half ago.
“I was always tired, my joints were constantly dislocating and I was having heart palpitations.
“I had never heard of EDS when I was first diagnosed but I quickly realised its seriousness and I was heartbroken when it was revealed I had the most severe form.”
Saffron now takes 15 tablets per day to stabilise her pain and takes daily morphine.
She said: “I have even had an operation on my knee to stop my joint from dislocating so often, it was complete agony and having surgery was the only option.”
Wade, 24, and Saffron have been married for two years and have two children, Sky, two and Eden, three, but since June last year they have not been able to enjoy mealtimes together.
She said: “Not being able to eat food has been really difficult, if I eat anything now I end up looking nine-months pregnant and I’m violently sick afterwards.
“I just wish I had an earlier diagnosis as I might have been able to avoid some of the complications if I was treated earlier for EDS.
“Now I know I have the life-limiting condition I try to avoid anything strenuous, even taking my children to the park will lead to a week in bed recovering afterwards.
“I hope other people reading my story who have the same symptoms as mine are able to get a quicker diagnosis.
“My aim for life now is to spend as much quality time with my children while I still can, Wade has been my absolute and I’m so lucky his family are so supportive.”
A spokesperson from EDS UK said: Ehlers-Danlos syndrome (EDS) is a genetic disorder which results in abnormally fragile and hyper-extensible tissues throughout the body.
“This can lead to physical disability and in some of the rarer types it is life limiting.
“EDS UK is the only UK based charity that exclusively represents and supports people with EDS.”
Help Saffron here: https://www.gofundme.com/kdm7z3gs