Football fanatic brothers born with deformed legs delighted to finally get prosthetic feet for Christmas
Two football fanatic brothers who were born without feet have received an early Christmas present… their first ever set of prosthetic feet.
Adorable Kian and Callum Jarram, 11 and seven, from Syston, Leicestershire, both inherited Adams Oliver syndrome from their dad – a condition so rare that it only affects 125 people in the world.
The condition causes premature growth of hands and feet, leaving them without some fingers and stumps for feet.
Kian and Callum, along with their dad, Jon, 35, are the only people known to have the condition in England.
Jon decided to set up a fundraising page for his sons as he desperately wanted to buy them silicone prosthetic feet – something that is not funded by the NHS.
Thankfully, donations from strangers, friends and family have covered the £8,000 cost – and the boys were delighted to try their feet on for the very first time.
Kian and Callum will now be able to play football without the agonising pain in their stumps with these new prosthetic feet.
Dad Jon said: “This is the best Christmas present that the boys could ever get.
“To them it’s such a luxury to be able to pick proper shoes for themselves and they’re so excited about it.
“These new feet are beyond life changing for them – in the New Year everything should be easier for our boys.
“These new feet are beyond life changing for them – in the New Year everything should be easier for them.
“Kian starts secondary school next year and now they won’t be any bullying about his condition.
“People won’t want to know about his feet and ask loads of questions because the prosthetics will look so real that other people won’t even know that they’re not.”
On Monday (December 21) the boys were fitted with their new feet for the very first time.
Jon, an industrial heating engineer, said: “All the boys dream of is being able to play their favourite sport without being in pain.
“Their feet just get so sore all of the time.
“The boys have been quizzed at school with people asking why they have such small feet, and on holiday by the pool we can hear people whispering about it.
“But it has brought the three of us closer – we’re connected by this rare condition.
“I’ve always encouraged the boys to embrace it because it’s nothing to be ashamed of.
“They’ve seen how I laugh and joke about it.
“Both of them play in the mid-field for two teams – Kian is even the captain of both teams.
“They don’t let them hold them back at all, but as a dad, to stop them being in so much pain doing something they love will be amazing.
“The first thing they said when I told them about these new feet was that they just want to be able to wear flip-flops.”
Jon’s daughter Chloe, nine, has not been affected by the condition – it has just been passed on to the boys.
Jon said: “The difference these new prosthetic feet will make for them is indescribable.
“Even though the new feet will make walking much more comfortable for them, as well as give the boys more opportunities, there is no funding for high definition feet under the NHS.
“They’re amazing because they actually look like real feet, so people wouldn’t stare at them anymore.
“They’ll last two years, although of course, with them being typical young lads they will experience lots of wear and tear.
“Football especially is a big part of our lives – we’re all Nottingham Forrest fans.
“I was the manager of the boys’ football team but now I do the scouting for Nottingham Forrest.
“In terms of their football performance, running will be so much easier for them with these new feet, and they’ll be able to come away from the pitch pain-free for a change.
“Both the boys and myself are so grateful, it just means so much to them and it really will be life-changing.
“This really will give the boys the best Christmas that they could ever ask for.”
Mark Ledger, Principle Prosthetist at the Blatchford Clinc, said: “I’ve never come across Adams Oliver syndrome before and I’ve been practicing for 25 years.
“To have it passed down from their dad is also very unusual.
“Their feet are currently covered in calluses and sores, especially because they’re boys who like to run around.
“The structure of their feet is disrupted, so with these prosthetics we want to protect their feet a bit more and hopefully correct their alignment.
“Their feet probably haven’t stopped growing but their limbs grow at a slower rate than you would usually expect to see in boys their age.”