Disney hurled: Schoolgirl’s trip to Disney made her vomit 50 times a day – because of rare condition where excitement makes her sick
A schoolgirl was left gutted after a surprise trip to Disney World made her vomit 50 times a DAY – because of a rare condition triggered by EXCITEMENT.
Mia Gleeson, 11, suffered from an undiagnosed vomiting condition for years – and medics were baffled as to why she would have episodes where she was sick for days at a time.
But it was only when mum Sarah, 41, from Feltham, Middlesex, planned a surprise trip to Disneyland – and Mia was left bent double over the sick bowl – that she realised Mia’s sickness was triggered by excitement – and she was eventually diagnosed with Cyclical Vomiting Syndrome.
And after her diagnosis, medics have now been able to give Mia medication to control her CVS – meaning she can live a normal life again.
Sarah, who is a full-time carer for Mia, said: “The first Mia and her twin brother Michael knew they were going to Disneyland was when they spotted my sister-in-law, Tina, in St Pancras station with a poster telling them, just before Christmas.
“You could see the excitement on their faces, but we hadn’t even got off the Eurostar when Mia started vomiting.
“It was such a shame because Mia only managed to go on one rollercoaster the entire time that we were there and we had to cancel seeing the Disney princesses. I even had to hire a buggy to wheel her around as she was so weak.
“Michael had loads of energy and wanted to see all of the attractions in the park, but Mia was unable to keep up.
“I realised after that holiday that Mia’s vomiting episodes would be triggered by excitement. There was always a pattern that she would become really ill in anticipation of her birthday as well.
Because Mia was born with an unrelated heart condition, though, doctors struggled to diagnose her with CVS – because they always though her vomiting was related to operations she had had on her heart.
But after Sarah’s brainwave on holiday, she was soon diagnosed – and was put on treatment for the condition shortly after her holiday in December 2015.
Sarah said: “In December, we made an emergency appointment with Mia’s gastroenterologist who diagnosed her with Cyclical Vomiting Syndrome.
“Mia is too young to be able to take anti-sickness tablets, but the doctor put her on Dioralyte which has really helped to prevent the weight loss that used to accompany her sickness.
“We’ve managed to cut down how often Mia has episodes of sickness now and we feed her as regularly as possible to keep her weight up, including a high calorie milk that she has in the evenings.
“While Mia doesn’t have as much energy as other children her age, she’s a very intelligent girl and easily keeps up in her studies despite having to take time off from school when she is ill.
“She loves school especially art and drama, and has a real no nonsense attitude in the playground. She’s even a school councillor.
“Mia pretty tough cookie despite everything she has had to endure over the years.”
Amanda O’Dwyer, from CVS UK, said: “At the moment there is no diagnostic test for CVS, which is one of the reasons it is so hard to diagnose.
“It is mainly symptomatic and many other things have to be ruled out first. This can include numerous urine and blood tests, faecal tests, kidney scans, and an MRI on the brain before a diagnosis can be made.
“CVS UK is there to support and inform sufferers, we fundraise in order to fund more research and work with other associations across the world to share any information.
“We also run a family day once a year where members can meet other sufferers and we have guest lecturers to give us information on the latest developments.
“At the moment, CVS is so unheard of we are in desperate need of more research and more money to fund this. It costs thousands and takes time to raise this kind of money.”