Devastated dad ravaged by brain tumour given just weeks to live – only four-months after miracle IVF baby born
A devastated dad ravaged by a brain tumour has just WEEKS to live – only FOUR-MONTHS after his miracle IVF baby was born.
Alex Lewis-Mayhew, 40, from Ibstock, Leicestershire, was diagnosed with a rare brain tumour in 2005 – but after beating the disease for seven years it returned aggressively in 2012 – and on August 13, he was told by consultants that he had just weeks to live.
His wife, Rachel, 46, only gave birth to their daughter, Augustyna, four-months ago after the couple underwent IVF last year.
But their miracle has been bitter sweet as there time together is now limited – as Alex is no longer eligible for further surgery and has exhausted all standard chemotherapy and radiotherapy treatments.
They are sharing their story in a bid to raise awareness for rare brain tumours and their GoFundMe in a bid to raise funds for alternative therapies to keep Alex as fit and well for as long as possible so they can enjoy making memories as a family, something they haven’t yet had a chance to do.
Rachel a full-time mum and carer for Alex said “Having our first baby together was supposed to be the happiest time of our life but it is very much bitter sweet knowing Alex has just weeks left with us.
“This year was going to be so special as we became parents for the first time after just one cycle of IVF which used all the money we had, Alex reached 40 and we will have been married for 10 years in October.
“I suffered three miscarriages before we fell pregnant using IVF, we had Alex’s sperm frozen in 2012 as we hadn’t given up hope of having a family of our own.
“We were hopeful that he would beat the disease like he first did in 2005 but that dream was torn away from us last Friday.
“Alex wants to spend his last weeks at home with me and Augustyna so we are having a hospital bed delivered this week.
“He is currently too weak to even hold his daughter but I know being around her uplifts his spirits.
It’s devastating seeing him so ill but I’m cherishing every moment we spend together as a family as I know there are so many things he is going to mis out on watching our baby girl grow up”.
Alex, a former motorbike engineer, was diagnosed with a rare brain tumour that is normally found in children – Medulloblastoma – in 2005, after suffering months of severe headaches.
But after an operation to remove the tumour in 2005, he was deemed in remission and the couple tied the knot a month later.
Rachel said: “We waited five years before we started trying for a baby as we wanted him to be cancer free.
“We never thought it would come back seven years later but when his headaches returned, a scan confirmed our worst fears.
“Alex had always wanted to become a dad so we froze his sperm in 2012 in the hope he would beat cancer a second time around.
“But this time it had spread to his spine and despite having several cycles of different chemo therapies that gave him some tumour free periods over the last two years.
“He also had a drug through a clinical trial in March of this year that severely debilitated him and still suffering the side effects, the cancer again returned”.
The couple were determined to stay positive and although Alex’s body had taken the wrath of intensive treatments, they hoped there would be other options available.
Rachel added: “I’m so proud of how Alex has handled the latest news, it’s so upsetting to know that he won’t be here to see Augustyna grow up but we are taking each day as it comes.
“She’s the miracle we always wanted but I just wish we hadn’t waited for five-years as we would have shared so many more memories together as a family.
“Doctors didn’t tell us all the facts about the high likelihood of Alex’s cancer returning so we thought we had all the time in the world to start a family.
“This year has been a complete roller-coaster and we’ve spent so much time apart as a family.
“I was hospitalised at 34-weeks pregnant when I suffered an a ruptured appendix with peritonitis, I ended up having to stay at my mums as Alex couldn’t look after me as I was off my feet for weeks.
“And Augustyna suffered two hernias at 6 weeks old so had to undergo surgery too which meant I had to stay in hospital with her.
“It’s always one thing after another but we are trying our best to cope with the recent news.
“Our friends and family have been so supportive and I have no set up a GoFundMe page so anyone who wants to help us help Alex spend as much quality time with his family as possible has the option to”